Two years on (and a couple of months) of processing Andrew's
final years / months / weeks, I have a lot of hindsight now. I recently found myself
feeling consciously and deeply thankful that he had me, for his sake, as that enabled
both of us to perceive him as autonomous long after he really was not. If I
hadn't been there to talk things over with, to cooperate in his plans, to share
his activities, I believe now that he would have shown up as confused and
incompetent much, much earlier. That spousal partnership kept him on track. And
he was happy and confident in it.
I can't bear to think of how it might have been otherwise. I'm so
incredibly glad he still had the feeling of being in charge of his life until
perhaps the last six months, so much so that neither of us questioned the fact.
And it was a nice life, which I know he felt too. Yes, there were the health
problems, but for the most part they were not incapacitating until the end. We
did have a scare two years earlier, when he had a fall, went to hospital a
while, and came home frail — but he recovered from that.
I suppose he would have coped, and had help around him, had I not
been in his life. His family would have made sure of that. But still, ours was such a close, intimate
connection and we were so like-minded, it made all the difference in the world.
Just before I turned the light out last night, I read a poem by
Galway Kinnell about a woman, apparently Kinnell's wife, looking after her
father, who had Parkinson's, as if he was the child. So like some of the ways I
looked after Andrew! Maybe that's why I had vivid dreams about his children not
fully understanding the situation, and about putting
him into and taking him out of nursing homes. It became a nightmare — in life
and in the dream.
I am glad the nightmare is over. I know his children loved him
dearly and understood as best they could. (We were geographically distant from them in their father's last 18 years, which may have made it harder — but it wasn't their doing; it was Andrew and I who moved away.) And yes, I
am deeply thankful he had me, and we had each other.
In a way, I still have that. I have become fully aware that he is
lodged firmly in my heart for as long as I shall live.